After giving me the medicine I was going to take this morning, I waited for nurse Barb and Jade to come out before I take it. They already did what they’ll be going to do this morning, I would just take the different medicine they gave me.
I coughed and coughed after I took all my medicine and drank it, so I took my nebulizer because I’m running out of breath again. This is normal for those of us with cystic fibrosis, a genetic disease that causes persistent lung infections and limits the ability to breathe over time.
Having cystic fibrosis will never be easy. My life is full of routines, boundaries, and self-control for me to live longer. CF has no cure, but treatment can just ease the symptoms, reduce complications, and improve quality of life. Still, I’m sick of being here.
I examined the painting I made last night in my sketchbook. It is a painting with a dark green background and a lung-shaped tree in the middle with different colors connected on it. I’m always drawing or painting something to remind me to continue fighting even if it’s tiring.
For me, this is the most amazing painting I’ve ever made. I was just looking at it, unknowingly that nurse Barb entered my room. In each connection in the painting symbolizes the people who became my strength and air in my daily battles.